Denay Hooks
I Need a Break: Asking for Help When You Are a Caregiver
Being a parent is a great privilege AND an exhausting job. When you have a child with a rare disease or disability, that exhaustion doubles. As parents and caregivers, we hesitate to ask for...
Diary of a Quarantined Mom
Due to our world's current situation, emotions and feelings have run hot and cold. I am enjoying this little reprieve from our usual busy schedule, but between three kids, homeschool, therapy at home, cooking...
When Your Medical Treatment is Determined Because of a Disability
A few days ago, I came across a headline that read "BREAKING: Texas Man With Disability Dies After Doctors Refuse To Treat Him for COVID-19." Having a child with a rare disease and a...